• toiletobserver
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    957 days ago

    I’m totally shocked that a corporation would do something as scummy and predictable as this. Shocked I tell you!

    • 52fighters
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      387 days ago

      The sale is the entire company and assets to Regeneron Pharmaceuticals.

      NPR reported in this issue:

      Regeneron Pharmaceuticals said last month it aimed to buy the company for $256 million. Regeneron said it would comply with 23andMe’s privacy policies and applicable law. It said it would process all customer personal data in accordance with the consents, privacy policies and statements, terms of service, and notices currently in effect and have security controls in place designed to protect such data.

      I don’t know much about Regeneron Pharmaceuticals but previously I read from others here that they represent the best case scenario.

    • 𝚝𝚛𝚔
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      447 days ago

      One of my family members moved to the US and did it. Really pissed me off that they’d do that but I guess it’s the thing to do there?? They’ve since moved back to AU but got to leave a little bit of themselves (and by genetics, me) behind to be sold to the highest bidder <3

      Thanks heaps for that.

        • @halcyoncmdr@lemmy.world
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          217 days ago

          Ancestry stuff has been pretty popular in the US for decades, DNA testing for it is relatively new but just the next easy step.

          • @Ledericas@lemm.ee
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            76 days ago

            ancestry is probably the one that datamined the most, and they do share it with LEO more freely than 23 and me.

        • 𝚝𝚛𝚔
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          7 days ago

          If its not, then why is it so popular there?

          Everyone’s so keen to be 12% Irish so they can claim they enjoy beer because of their proud Irish heritage, or have 0.5% native american so they can claim a tribe and get tattoos that are deeply spiritual (now), or that 8% Italian which explains why they love pizza. For a country that’s so publicly proud - what with the flags and all - everyone’s certainly keen to find any excuse to pretend to be from somewhere else.

          I know literally one Australian who’s done it, and they only did it after living in the US for a couple of years.

          • Miles O'Brien
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            86 days ago

            then why is it so popular there

            Because like many countries whose inhabitants come from a variety of places, you’ve got lots of people interested in their “heritage”

            Since most people in the US can’t say their family has been here longer than a couple hundred years, and depending on the area no more than 100 or so, a lot of people wish to know “where they came from” so to speak. DNA testing is just easier than tracing a family tree.

            I happen to be lucky enough to have a family member obsessed with genealogy, who traced down the last 1,000 or so years depending on which parts of the family and what areas they’re from, so I don’t need genetic testing to know 99% of my family is white as fuck with a couple POC from different continents and a native back in the 1700s. I don’t feel any particular draw to any culture, nor do I feel like donning traditional garb or participating in holidays, ceremonies, rituals, or customs. Some people do.

            I totally get it if it’s not your thing, especially since that kind of mentality of “ooh let’s find out where our families came from” isn’t present in most other places in the world, and definitely not to the same degree even in other colonial areas. Personally I think it’s part of that whole “melting pot” ideology, but I’m just some rando on the internet.

            Honestly even without my relative tracing the family tree, I would never have paid to give my DNA to a company for results with questionable accuracy. Shits weird, yo.

    • dhhyfddehhfyy4673
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      157 days ago

      Did any family members though? Particularly close members since that ends up giving a ton of yours as well :\

      • @phdepressed@sh.itjust.works
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        87 days ago

        I know a first cousin of mine did. :( Over 15million people used it.

        The only silver lining is that they’ve been bought by a research company instead of an insurance company. I don’t know if theres a legal leg to stand on per the data. They almost 100% agreed to give up ownership to the company, that’s the only way it could do any of the genetic relationship analysis that it did.

        • asudox
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          15 days ago

          2 of my cousins and my sister did.

          Unfortunate how less people think of privacy these days.

  • @Pnut@lemm.ee
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    417 days ago

    I tried explaining this to my family. The legal documents you have to agree to should be a huge red flag when all you get is “you are caucasian”.

    • 𝚝𝚛𝚔
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      187 days ago

      Yeah but I might be .05% native american and then I can get a cool eagle tattoo

      • @kautau@lemmy.world
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        156 days ago

        “My name is no longer Brayden, it’s Tanec Iak, meaning ‘he who mines redstone’”

            • @ebolapie@lemmy.world
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              6 days ago

              If the child stayed in the native community wouldn’t that imply that they would likely grow up to have a child with someone else in that community? And that their descendants would be more than half a percent native genetically?

              • @Lifter@discuss.tchncs.de
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                16 days ago

                Uhh yes, sorry. I had it the other way around. Perhaps a native american then raped/had child with a caucasian, who kept the child?

    • baltakatei
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      6 days ago

      I was familiar with how their single-nucleotide polymorphism fingerprinting worked in principle when I submitted my sample. So, I was not surprised when my report indicated majority Native American (both my parents were born in the Navajo Nation).

      As for preventing misuse of the genetic profile 23andMe built, the primary legal protection is the Genetic Information Nondiscrimination Act of 2008 (GINA) which prohibits insurance providers and employers from discriminating against patients and employees based upon disorders that are correlated with their genetic information. I believe it is prudent for people to examine their own genetic information in detail. I believe the legal protection GINA offers is sufficient for SNP profiling. I also believe as genetic profiling technology improves, the principles of non-discrimination set by GINA should be peotected with additional legislation.

  • @TrueStoryBob@lemmy.world
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    246 days ago

    I was so tempted to try their service, but it was always in the back of my mind, inside the part of my brain that was conscious during marketing 101 class in college: “What’s the long term business model here? What happens after they have everyone’s genetic identity?” Then it dawned on me like ooooohhhhh that’s the plan… no thanks.

  • @Lumisal@lemmy.world
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    136 days ago

    That there’s this just opposition must mean quite a decent chunk of politicians and wealthier people may have used this service.

  • PastafARRian
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    35 days ago

    Can whoever posted for everyone to delete their 23andme reply here with an “I told you so?”. We owe you that much for alerting us. I saw it a few months ago and did so, thanks!

  • @BeMoreCareful@lemmy.world
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    46 days ago

    Idk if it was just a conspiracy theory, but I thought a lot of these DNA testing websites were funded by the Mormon church.

    I feel like they have bags of cash.